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THIS IS PARKINSON´S
TEN YEARS LATER
ABOUT THE PROJECT.
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There is no disease more complex and multifaceted than Parkinson’s.
On these pages you will find the stories of a group of individuals all diagnosed with Young Onset Parkinson’s Disease, ten years after they appeared in the groundbreaking photo exhibition "This is Parkinson’s". The creator was Anders M. Leines, a Norwegian photographer and journalist. Anders also has Parkinson`s.
What happened, and how are they coping with this life changing condition?
This is Parkinson´s.
«This is Parkinson’s» was a photo project that used powerful visual storytelling as a way to challenge the stereotypical image of a person with Parkinson’s as a frail, whispering and drooling old man. Instead, it portrayed young people, focusing on their strengths, dignity and individuality in a way that came to empower patients, caregivers and professionals.
Impact.
The exhibition was showcased in Norway, at the European Parliament building in Brussels, in London, and in many cities in the United States. It was featured at the World Parkinson Congress in Portland in 2016 and helped shift public perception of the disease. The images played a crucial role in bringing the Dutch healthcare model “ParkinsonNet” to Norway.
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What the Follow-Up Project Envisions:
• By revisiting the same group of people ten years after the original project, the work offers a rare and deeply personal insight into how Parkinson’s disease evolves—not just medically, but emotionally, socially, and existentially. There are stories of coping and adapting, hope and disappointment, the side effects of the drugs and surgical procedures that went wrong. But also of perseverance and newfound insights. It has been called brave, raw and moving, and perhaps even more important than the original project.
• Using film, photography, and factual storytelling to show the progression of the disease and the resilience of the individuals.
• Exploring critical questions about Parkinson’s research, treatment progress, and the lived experience of patients.
In collaboration with
Sponsored by Stiftelsen Dam
